Saturday, January 24, 2009
When I got here today, Mallory was in a great mood. Seemed to be feeling pretty good, even joking. Apparently that was just the morphine talking. She went down for an MRI, and that went really well. She was able to remain still through the whole thing, and got some good pictures. Then her IV couldn't be put back in, and things went downhill from there. She's resting now, and hopefully her mood gets better! Still no concrete results...they're saying now that she might come home the end of next week.
Thursday, January 22, 2009
Wednesday, January 21, 2009
Mallory has a new infection , and they have put her on antibiotics to combat this. Her 36 hour flu is over, and she is in a MUCH better mood today. They're trying to wean her off of the morphine. I say she has more color in her face, she says she's just flushed. Also, her liver functin is returning to a normal level, although it's not quite there, yet.
Tuesday, January 20, 2009
Monday, January 19, 2009
Sunday, January 18, 2009
Mallory, Sunday
Mallory had a really good day yesterday, then a really terrible night. As a result, she has had a pretty bad day today. She hurts all over, and is also very nauseous. She's was in a pretty bad mood today until they got her drugs to her. Then she'd be all right for about 15 minutes. Mallory has been unable to eat, so they've started giving her nutrients through her IV. She did drink an ensure, though. They're doing more tests tomorrow, so she needs to sleep tonight. They have narrowed the cause of these problems to one of two things, and the scans tomorrow should provide some answers.
Mallory had a really good day yesterday, then a really terrible night. As a result, she has had a pretty bad day today. She hurts all over, and is also very nauseous. She's was in a pretty bad mood today until they got her drugs to her. Then she'd be all right for about 15 minutes. Mallory has been unable to eat, so they've started giving her nutrients through her IV. She did drink an ensure, though. They're doing more tests tomorrow, so she needs to sleep tonight. They have narrowed the cause of these problems to one of two things, and the scans tomorrow should provide some answers.
Saturday, January 17, 2009
Mallory, Saturday Night
I just got off the phone with my dad...and the information has changed somewhat. Sorry about that, but it seems we're kept in a slight fog about what is going on. The liver specialist spoke with them, and Mallory's liver function is at a 900. A normal person's is around 200. Being the liver specialist, he only really commented on that organ, but apparently other organs have been affected. Now we're back to thinking that this was brought on by the medication change. Mom and Mal should be able to come home by the end of next week. However, the doctor said Mallory will not be able to return to school until after Spring Break.
I just got off the phone with my dad...and the information has changed somewhat. Sorry about that, but it seems we're kept in a slight fog about what is going on. The liver specialist spoke with them, and Mallory's liver function is at a 900. A normal person's is around 200. Being the liver specialist, he only really commented on that organ, but apparently other organs have been affected. Now we're back to thinking that this was brought on by the medication change. Mom and Mal should be able to come home by the end of next week. However, the doctor said Mallory will not be able to return to school until after Spring Break.
Mallory, Saturday
The doctors finally came in to talk to Mom and Mallory. There is definitely some nerve damage, and they have started her on some medication specifically for the pain involved with that. They performed an abdominal ultrasound on her yesterday, and did not see anything with her liver. However, they are going to perform an MRA (?) and MRI on her tomorrow to further investigate the liver, with a possibility of a biopsy. They are under the impression that this is an autoimmune related thing, not related to the medication change. Mom asked repeatedly if the nerve damage was fixable, and they would not respond, so who knows. At least we're getting closer to an answer!
The doctors finally came in to talk to Mom and Mallory. There is definitely some nerve damage, and they have started her on some medication specifically for the pain involved with that. They performed an abdominal ultrasound on her yesterday, and did not see anything with her liver. However, they are going to perform an MRA (?) and MRI on her tomorrow to further investigate the liver, with a possibility of a biopsy. They are under the impression that this is an autoimmune related thing, not related to the medication change. Mom asked repeatedly if the nerve damage was fixable, and they would not respond, so who knows. At least we're getting closer to an answer!
Friday, January 16, 2009
Mallory, Friday
Jarrid, Marci, and I went down to see Mallory tonight. I'm actually in the hospital as I'm writing this. Her color has returned somewhat and she has gained a little of her weight back. Still no test results to indicate what is going on...the doctor is supposed to come speak with them tomorrow. She is in a terrible disposition, but cards would be appreciated.
Jarrid, Marci, and I went down to see Mallory tonight. I'm actually in the hospital as I'm writing this. Her color has returned somewhat and she has gained a little of her weight back. Still no test results to indicate what is going on...the doctor is supposed to come speak with them tomorrow. She is in a terrible disposition, but cards would be appreciated.
Thursday, January 15, 2009
Mallory
A lot of people have been asking me about Mallory, so I decided to start a daily update about her here...
First of all, she was diagnosed before Christmas with Mixed Connective Tissue Disease. I don't really understand this disease, except that it gives Mal a lowered immune system. In conjuntion with the MCTD, she also has Reynaud's phenomenon and arthritis. Reynaud's has to do with her circulation in her extremeties. So, long story somewhat shorter, she has been on medication for her circulation and arthritis.
Over the holidays Mallory got really sick with whatever was going around town. The rest of us got over it in about 3 days, she took closer to 2 weeks. She stopped taking her medication while she was sick, and attempted to restart it when she was well. She had a reaction to one of the medications, and discontinued it. After calling her doctor, she switched medications, and things went downhill from there.
Mallory really does not want a lot of details given out at this time, but she has been checked into the hospital (if you want to know which one, feel free to call me). They are giving her fluids through her IV and pain medication. They are running tests daily, but have not returned many results yet. I can tell you that they found her liver to have "elevated function", whatever that means. I'll post more when I know it...am going tomorrow to see her.
A lot of people have been asking me about Mallory, so I decided to start a daily update about her here...
First of all, she was diagnosed before Christmas with Mixed Connective Tissue Disease. I don't really understand this disease, except that it gives Mal a lowered immune system. In conjuntion with the MCTD, she also has Reynaud's phenomenon and arthritis. Reynaud's has to do with her circulation in her extremeties. So, long story somewhat shorter, she has been on medication for her circulation and arthritis.
Over the holidays Mallory got really sick with whatever was going around town. The rest of us got over it in about 3 days, she took closer to 2 weeks. She stopped taking her medication while she was sick, and attempted to restart it when she was well. She had a reaction to one of the medications, and discontinued it. After calling her doctor, she switched medications, and things went downhill from there.
Mallory really does not want a lot of details given out at this time, but she has been checked into the hospital (if you want to know which one, feel free to call me). They are giving her fluids through her IV and pain medication. They are running tests daily, but have not returned many results yet. I can tell you that they found her liver to have "elevated function", whatever that means. I'll post more when I know it...am going tomorrow to see her.
Monday, January 12, 2009
T is for Twins and Trouble
We started dance lessons last week, so I grabbed a couple of shots of the girls in their "dance-y" clothes. The blue background is Rosemary's newly painted playroom. And the little boy is Caleb, who got his cheek bitten today. Guess who bit it? That's right, Addison. And it wasn't a dainty bite either. I'm at my whit's end with her. I've taken away TV priveleges, spanked, bitten back. I don't know what else to do. If she bites again tomorrow, no dance lessons. Ugh!
Thursday, January 01, 2009
Walk-In Movie
When the Judd's used to live here they told us about how they would have people over and watch movies/play games on the side wall of our house. We really liked that idea, so we've been on the lookout for a reasonable projector since we moved in (around 3 years ago). We finally found one at Kohl's last week, clearanced to $78, so we jumped on that. The weather was pretty nice tonight, so we decided to give it a test run. Not too bad! We watched TinkerBell outside, complete with movie popcorn, hot chocolate, and movie candy. We didn't even need the firepit! All in all, it was a pretty great night.
Emma insisted on 3 blankets.
The set-up.
Addison and Daddy.
Hard to see, but Tinkerbell and some other fairy displayed on the wall.
When the Judd's used to live here they told us about how they would have people over and watch movies/play games on the side wall of our house. We really liked that idea, so we've been on the lookout for a reasonable projector since we moved in (around 3 years ago). We finally found one at Kohl's last week, clearanced to $78, so we jumped on that. The weather was pretty nice tonight, so we decided to give it a test run. Not too bad! We watched TinkerBell outside, complete with movie popcorn, hot chocolate, and movie candy. We didn't even need the firepit! All in all, it was a pretty great night.
Emma insisted on 3 blankets.
The set-up.
Addison and Daddy.
Hard to see, but Tinkerbell and some other fairy displayed on the wall.
Sunday, December 28, 2008
I Love Nights Like This...
Lately, bedtime at our house has been like a slumber party...every night. Lots of giggling, some crying, and frequently some music (both instrumental and a Capella). It's actually kind of frustrating, especially on the whiny nights. But tonight they were giggling and playing with their new dolls, so I just ignored them and went on about my business. This is what I just walked in on...mind you, that's a toddler sized bed. They are cozy (to use their word). The big question is, do I move them, or let them sleep like that? Probably move them so they don't wake each other up at 2 a.m.
Friday, December 19, 2008
Thursday, December 18, 2008
Thursday, December 11, 2008
Tree Lighting Frock GIVEAWAY!!!!
Tree Lighting Frock GIVEAWAY!!!!
Grosgrain is a mom who sews for her child, then gives the clothes away. The only way you can win them is to create a link to her site. So here's the link. I just wish she sold these designs, but that'd probably take the fun out of it for her. :)
Grosgrain is a mom who sews for her child, then gives the clothes away. The only way you can win them is to create a link to her site. So here's the link. I just wish she sold these designs, but that'd probably take the fun out of it for her. :)
Saturday, December 06, 2008
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