Cheapskate

It would be nice if my first blog "back" was about the girls...but it's not. I haven't had time to take any new pics of them lately. But I did want to quickly share this new website I found today... http://www.simplythrifty.com/100-things-you-can-make-yourself/. It's right up my alley...things you can make yourself cheaply. I'm kind of interested in making the Ginger Ale.

Mallory is Home!

She will be going through occuptional and physical therapy every week, and should return to school after Spring Break. If no one objects, I'd like to go back to blogging about my kids and stop blogging about Mallory. :P

Another good day today. Still on track to come home Wed.

Mallory is officially off of her morphine and lipids through her IV. The only thing she is still receiving through the IV are her antibiotics. She should finish those up by Wednessday, and as long as everything keeps going well, she will then be able to come home. Pray that she does not get another infection.

Marci, the girls, and I went down to the hospital last night. Mallory was...HAPPY! It was weird. She was almost back to her normal self. She had physical therapy yesterday, and said she surprised everyone with how much she walked. They also put her in a whirlpool. She also went to the school on the hospital grounds yesterday and was able to do some school work. This is a totally different kid than I saw on Sunday. She did end up losing her pick line, and received 2 IV's, which was traumatic for her. Hopefully she gets to come home next week and there won't be any more IV's.

Mallory had her first physical therapy today. Although Mom didn't say much about it, she did say it went pretty well. The doctor came in and said she was working on Mallory coming home next week. Don't know if I already mentioned this...they're back to the original diagnosis of MCTD. All of this was just complications from it. Please pray that Mallory come home (ready) sooner than later.

Mallory finally has a come home date of (hopefully) two weeks from now. She starts physical therapy tomorrow, and supposedly they are going to be pretty aggressive with her. The infection is still present, but her fever is down.

Mallory got an infection in her pick line today, and has a temperature. They're hoping to be able to treat it with antibiotics without having to remove the line. The pain management specialists came by and spoke with her about different options, but no decisions were made yet. This is a set back we were hoping to avoid.

Mal had a pretty good day today. No tests, just resting. She only got cranky when her meds started to wear off, but was good to go again about 10 minutes after she would take them again. Hopefully tomorrow will be the same.

The results of the endoscopy and colonoscopy (that I didn't know about so did not report on) were clear. Still waiting on the biopsy of her feet to see what nerves are affected.

Mallory made it through all of her tests today, and felt a little sick. She and Mom both got no sleep last night and are extremely tired. Hope to hear results by tomorrow evening (if not, then by Monday).

The upper GI did not show any results, tomorrow is the endoscopy. Mallory was not able to eat again today, and in a very foul mood. While I was visiting her the nurse came in to take her vitals. I noticed that her temperature was up around 100 again, and her blood pressure was up as well. She has received lots of cards, balloons, blankets, etc, etc, etc. She really does appreciate all of them, so keep em coming! I think receiving them helps her feel connected.

Mallory is apparently not very happy tonight. They have not let her eat since midnight last night, and she is finally hungry (probably due to the steroids). At any rate, they came to take her to radiology about noon today, finished her last picture at around 7:30 pm tonight, and are supposedly taking her down for another sometime around 9 tonight. Mom also missed lunch and dinner, so I imagine that both of them were pretty short with each other/hospital staff. Dad was able to go down tonight, which allowed Mom to slip away and eat finally. I'm interested to find out what all of these x-rays end up showing.

Mallory has stopped vomiting, and was able to eat 1 1/2 pieces of pizza today! Tomorrow she is having an Upper GI, and Thursday she will have a scope. They think that possibly some of the pain in her feet is caused by a restriction in blood flow, and are going to try placing nitroglycerin patches on her feet tonight to see if that helps. Her blood levels show that there may be pancreitits, but they will know more about that when they get new blood work in the morning.

Mallory is about the same today. They are supposed to do an endoscopy early this week to check for inflamation. They are probably going to start her on steroids today to help with this (hopefully).